William’s seizures: Started Easter night. They only happen about once a month either in the first hour after he goes to sleep or in the last hour before he wakes up. Seizures usually happen in twos, either one in the morning and then one in the night. Or two nights in a row. It has happened once during a nap in the car on the way home from a funeral.
Roseacea: I have always had rosy cheeks. In July I noticed the rosy was spreading and getting darker. By mid-August my face was a mess! Five doctors later and after several visits to the dermatologist, I’m still trying to figure out how to get rid of it! I think my triggers are wheat, sugar and stress. I started yoga in September and am cutting out those dietary triggers. It hasn’t gone away but it does look a little better. I think I will try an oral antibiotic soon. Not just topical. One of the positive side-effects of going through this is that I have been able to show my teenage daughter that I am not defined by my face. I have really tried to go through this gracefully and to not get too wrecked up over a red, swollen, bumpy face. (I also keep telling myself that it could be worse. It could be something truly awful, like cancer.) My life does not have to be ruined because I don’t look as good as I would like.
Broken bones: Last Christmas Sam broke his hand when my brother Isaiah challenged him to punch his arm as hard as he could. I believe that the broken hand is what finished off Sam’s career as a violist. He didn’t play for many weeks as he healed and then he just realized that he didn’t really want to start up again. So, after seven years he quit. Actually, he switched to learning the piano and is really enjoying that. I had a really hard time giving up the dream I had for him. Lizzie also broke something. For one week last winter she was dancing/rehearsing/performing for five hours a day. All that dancing caused her to break the bone on the top of her foot. She is still trying to recover! It has been hard for her because she doesn’t want to stop dancing but she is in pain after she dances for any significant length of time.
Me: There is nothing standing in your way to do anything you want to do.
Lizzie: (with a straight face) said, “That’s not true. We can’t be in the paralympics.”
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